36 Years Undiagnosed: My Cerebral Palsy Story

I’m now a Universal Credit Review Agent in Birkenhead, but before joining the Civil Service I spent 15 years as a registered general nurse. Nursing was my dream career. I loved teaching students and had the privilege of supporting patients and their families through some of the hardest moments of their lives.

Although my disability has been with me since birth, it was only as I got older, juggling demanding shifts, family life, and long days on my feet that the symptoms became harder to ignore. I managed increasing pain, pins and needles, fatigue and regular physiotherapy, always supported by my mum, who has been my rock throughout.

A Long Search for Answers

By 2020 my symptoms had worsened. I dropped things more often, my foot sometimes turned in, and I would limp when tired. I sought further specialist advice, but the pandemic meant long delays. During that time, I continued caring for my family and working 14‑hour shifts, trying new medication and making the best of each day.

Receiving a Diagnosis

Two years later, I finally received clarity: I have cerebral palsy caused by complications around birth. Hearing the words at 36 was overwhelming, and I cried throughout the appointment supported by a kind healthcare assistant who reassured me throughout. Due to Covid restrictions, I had to attend hospital on my own. The diagnosis was also a relief. It helped me understand the patterns I’d lived with all my life and confirmed that what I was experiencing was real.

Reflection & Career Change

With this new understanding, came so much made sense. From childhood memories to the difficulties, I experienced during pregnancy and the fatigue that followed me through my nursing career. Occupational health assessments showed I would need a role that protected my long‑term wellbeing. It was a difficult decision to step away from nursing, a career I loved deeply, but I knew my family and my health had to come first.

After trying a fully remote role that wasn’t right for my wellbeing, my husband a long‑serving civil servant encouraged me to look for opportunities within the Civil Service. I applied for the role of Universal Credit Review Agent, was interviewed by video and received the notification that I had the job a few months later. I was elated!

Thriving in the Civil Service

From day one, I felt supported. I received reasonable adjustments, specialist equipment, and colleagues who took time to understand my needs. With the right medication, physiotherapy and mobility support, everyday life has become far more manageable.

Discovering Thrive (a disability network within the DWP) has also been a real highlight; its messages of positivity and wellbeing give me a lift each day, and I’m always happy to share them with my team.

Finding Hope

My journey shows that even after years of uncertainty, there is always hope. With understanding, the right adjustments, and an inclusive workplace, you really can thrive, both personally and professionally.

by Elizabeth.